Health research charities play a fundamental role in society, occupying a space at the interface of the health research community and the public. Together our members represent over 1 million Irish patients. They work relentlessly to improve the lives of the people they represent, through research.
HRCIs role as an umbrella organisation makes us perfectly placed to understand the role and needs of our members. We use this knowledge to advocate for improvements to the Irish health research environment, through working with our members, researchers, policy makers, politicians and many other stakeholders. Some examples of our advocacy activities include:
- Our 2019 ‘Research Towards a Healthier Ireland‘ position paper.
- Persistent calling for increased public and patient involvement (PPI) in health research. The Irish Health Research Forum held the first national event on this topic in 2014. We have worked consistently since then with many partners, including all five ‘PPI Ignite’ programmes in Ireland, as well as The Wheel and Campus Engage to make this a reality.
- The addressing of many additional topics in health research through our management of the Irish Health Research Forum, including the Health Research Regulations, researcher careers and the interface of health services and academia in health research.
- Our multiple avenues of work to improve the lives of rare disease patients through research, including through managing the national Rare Disease Taskforce.