Working With Industry
The engagement of health research charities with the healthcare industry has the potential to speed the development and improve the quality of treatments for health conditions. Charities can add much value to pharmaceutical and other healthcare industries, due to their knowledge of the patient experience and the relevant community. Industry often provides valuable financial support to patient organisations, enabling them to undertake their important work.
Good governance for charities engaging with industry
In engaging with industry, it is essential that patient organisations act according to the highest standards of good governance, in order to best represent patients and to protect their independence and reputation. To facilitate health research charities in this regard, we have developed a template Code of Practice for engaging healthcare industry. Most similar codes/guidelines are written from the perspective of industry. This code takes into consideration the governance requirements of industry but has been developed from the charity perspective.
It will hopefully provide patient organisations with a starting point for what they need to consider in their dealings with the healthcare industry and can be adapted according to the situation and needs of individual organisations.
Undertaking PPI in industry-led research
HRCI partnered with the Charities Research Involvement Group in the UK, to produce guidance on PPI in Industry. The guide focuses on how to overcome the issues that health research charities often face when encouraging or participating in industry-led PPI and offers practical advice on how to do it well.