Health Research Charities Ireland along with Rare Disease Ireland, Cystic Fibrosis Ireland, IPPOSI and the Northern Ireland Rare Disease Partnership have come together to form The Rare Disease Forum. This is a public and patient involvement initiative for Ireland, North and South, which calls for coordinated action to improve the health and social care needs […]
The HRCI 2022 Annual Report In 2022, we were determined to reconnect and facilitate crucial conversations among our community following the challenges of the pandemic. We organised an in-person workshop in March, partnering with the PPI Ignite Network, which brought together colleagues for the first time in years. The event was filled with joy and […]
Becoming a member of HRCI in 2020 has been hugely beneficial to Family Carers Ireland’s research function. As a charity with limited research resources, having access to the network of research charities, guides and workshops have been critical to the strengthening of our research function. Since joining Family Carers Ireland as Research Officer in 2019, […]
As Policy and Research Manager at The Alzheimer Society of Ireland, being involved with HRCI has been immensely beneficial and a vital support to our research work. At ASI, we strive to empower the voice of people with dementia in research through our patient and public involvement (PPI) programme and support them in being proactively engaged in […]
Being a member of HRCI has been invaluable to DEBRA Ireland. As the Research Manager in a small rare disease charity, having access to the network of research charities and the guides and workshops through HRCI has been priceless. I was delighted to become a member of the Board of Directors in 2019. This happened […]
Advancing Genomics in Ireland: Part 2 Date/Time: Wednesday, 12th May 2021, 10.00am – 12.00pm An online event via Zoom webinar. Genomics research has the power to unlock better and more personal healthcare for millions of Irish people. This event focussed on what Ireland needs to do to harness that potential. This will be the second […]
HRCI conducted a survey of its members in December 2020 to ascertain the impact of Covid-19 on Irish Health Research Charities. The results published in Feb 2021 demonstrate the impact on income, patients, research, and charity activities.
On January 28th we launched our 2021 position paper: Renewal through health research.
It lays out a series of critical health research actions to help create a post-Covid Ireland where healthcare is world-class and based on evidence.
It calls for:
Increased support for clinical research
Development of a national genomics strategy
PPI integrated into health research policy
Thank you to all HRCI members whose views and experiences have helped shaped the recommendations within and to our many supportive collaborators.
We welcome you using it and sharing it, to help achieve our common goals.
Advancing Genomics in Ireland Date/Time: Thursday, 12th November 2020, 11.00am – 12.30pm This was an online event via Zoom webinar. Genomics research has the power to unlock better and more personal healthcare for millions of Irish people. This event will focus instead on what Ireland needs to do to harness that potential. We hope for […]
