The Rare Disease Forum (RDF) is a public and patient involvement (PPI) initiative for Ireland, North and South. The rationale for the Forum is that much more needs to be done to address the health and social care needs of those living with a rare disease in Ireland. The founding organisations and members of the […]
Please click here to access the full agenda and bios for speakers at this event HRCI is delighted to welcome attendees back to an in-person Irish Health Research Forum meeting on May 11th in The Spencer Hotel, IFSC. This event will bring together researchers, healthcare professionals, patients, policy makers, funders, industry representatives and many more, […]
We are making progress in PPI in academic research in Ireland but less so in industry-led research. It’s time to discuss the importance, talk about how to overcome the barriers and hopefully develop some new relationships as we do so.
Date: 18 September 2019 Time(s): 13.30-18.30 Venue: Wood Quay Venue, Dublin City Council Offices, Wood Quay, Dublin 8 Conference Agenda
Date: 30 May 2019 Time(s): 9am-1pm Venue: The Carmelite Community Centre, 56 Aungier Street, Dublin 2 The Medical Research Charities Group invites you to attend a seminar on Evidence for Advocacy Patient-focused charities and other community organisations increasingly seek to be guided in their activities by evidence. In parallel, policy makers now regularly insist on evidence from those who are […]
Date: 28 February 2019 Time(s): 9am-1pm Venue: Chartered Accountants House, Pearse Street, Dublin 2 The 12th annual Rare Disease Day focuses on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families face every day. Rare Disease Day 2019 is […]