The Rare Disease Forum (RDF) is a public and patient involvement (PPI) initiative for Ireland, North and South. The rationale for the Forum is that much more needs to be done to address the health and social care needs of those living with a rare disease in Ireland. The founding organisations and members of the […]
Do you want to make a difference? Meet lots of interesting people? And work in a supportive and enjoyable environment? We are seeking a passionate, people person with relevant experience for the post of Research Support Officer. If you believe you fit the description, get your application in. Research Support Officer Job description Fixed […]
In May 2020, HRCI sent the research support offices of eight Irish universities a survey, asking them about the impact of COVID-19 on health research. We have compiled a brief report on the findings. All eight universities kindly responded to the survey, the findings of which will help to inform our member charities and other […]
In the current COVID-19 crisis, many of our members and other charities need to run important meetings using Zoom or similar technology. Here’s our advice on how to make it as optimal an experience for everyone as possible. As per usual, send all Board papers in advance. As attendees might not have access to a […]
We made very strong progress with limited resources over the course of our 2016-2019 strategy. It is now time to consolidate that progress and to extend our influence further, in ways that are meaningful to our objectives. Following in-depth consultation with our Directors, members and other stakeholders, we have laid out four strategic aims to […]
When: Wed 29th of Jan at 8pm. Hashtag: Use the hashtag #IndustryPPI to join the conversation Background: Recently the Charities Research Involvement Group (CRIG), supported by Health Research Charities Ireland (HRCI), developed a guide for charities, entitled ‘Supporting patient and public involvement in industry-led research’. On the morning of Jan 29th, HRCI will host a briefing […]
We are making progress in PPI in academic research in Ireland but less so in industry-led research. It’s time to discuss the importance, talk about how to overcome the barriers and hopefully develop some new relationships as we do so.
Date: 18 September 2019 Time(s): 13.30-18.30 Venue: Wood Quay Venue, Dublin City Council Offices, Wood Quay, Dublin 8 Conference Agenda
Date: 30 May 2019 Time(s): 9am-1pm Venue: The Carmelite Community Centre, 56 Aungier Street, Dublin 2 The Medical Research Charities Group invites you to attend a seminar on Evidence for Advocacy Patient-focused charities and other community organisations increasingly seek to be guided in their activities by evidence. In parallel, policy makers now regularly insist on evidence from those who are […]
Date: 28 February 2019 Time(s): 9am-1pm Venue: Chartered Accountants House, Pearse Street, Dublin 2 The 12th annual Rare Disease Day focuses on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families face every day. Rare Disease Day 2019 is […]
