How do we begin the conversation about research involvement with patients and the public? This new PPI toolkit helps health research charities and others starting on the journey to tackle this challenge. It offers particular guidance on facilitating a first workshop with PPI contributors. It was developed in partnership by TCD PPI Ignite, HRCI and […]
Patient and Public Involvement
When: Wed 29th of Jan at 8pm. Hashtag: Use the hashtag #IndustryPPI to join the conversation Background: Recently the Charities Research Involvement Group (CRIG), supported by Health Research Charities Ireland (HRCI), developed a guide for charities, entitled ‘Supporting patient and public involvement in industry-led research’. On the morning of Jan 29th, HRCI will host a briefing […]
Do patients and the public trust researchers with their health data? In 2019 we held a small workshop with patients and members of the public to capture their views on how they wish their data to be treated, for the purposes of health research. Download our pdf to see the results of our findings. Do […]
We are making progress in PPI in academic research in Ireland but less so in industry-led research. It’s time to discuss the importance, talk about how to overcome the barriers and hopefully develop some new relationships as we do so.
Universities and colleges are our great bastions of knowledge. Despite the many pressures on their time, one of the great joys of being an academic (I am using the term academic broadly) is in being paid to generate new knowledge. Lauding academics as knowledge holders and experts bestows on them the esteem required to ensure […]
On 30 May 2019, a group of patient-focused organisations and other interested parties attended Health Research Charities Ireland (at the time called the Medical Research Charities Group) ‘Evidence for Advocacy’ seminar. They heard diverse perspectives from experts in research, policy and public relations (PR) and were also presented with case studies from a number of charities sharing refreshingly honest accounts of their experiences. By focusing on advocacy through a research lens, the event highlighted the power of taking an evidence-informed approach to support advocacy campaigns and to guide efforts to improve health.
This practical guide follows on from that seminar and draws on the information presented by the speakers, contributions from the floor, as well as the expertise of the authors and Health Research Charities Ireland (HRCI). We are very grateful to all who contributed.
HRCI has partnered with the Charities Research Involvement Group in the UK, to produce guidance on PPI in Industry. The guide was launched in September 2019 and focuses on how to overcome the issues that health research charities often face when encouraging or participating in industry-led PPI and offers practical advice on how to do […]
Date: 30 May 2019 Time(s): 9am-1pm Venue: The Carmelite Community Centre, 56 Aungier Street, Dublin 2 The Medical Research Charities Group invites you to attend a seminar on Evidence for Advocacy Patient-focused charities and other community organisations increasingly seek to be guided in their activities by evidence. In parallel, policy makers now regularly insist on evidence from those who are […]
October 2018 Language is perhaps the most valuable tool that we have as humans. It is important in not only conveying our meaning, but also as an instrument of positive change. During numerous recent meetings I have found myself immersed in discussion on the language of patient and public involvement (PPI). These discussions have left […]