Our most recent reports, guides, templates, etc, from all our areas of activity.
Patient registries play a crucial role in enhancing healthcare and health outcomes, serving as vital foundations for developing and maintaining research networks and projects. A steadily increasing appreciation of their importance in the broader health data landscape, along with advancements in technological solutions, is leading more groups to embark on developing a registry. While there […]
Guidance for charities, other civil society organisations, researchers, research institutions and funders, to achieve successful research partnerships. This publication delves into the immense value that arises when charities and researchers partner to achieve societal benefit from research. The amalgamation of their distinct expertise and wisdom holds the potential to improve lives. However, despite the promise, […]
You can read the full report here The topic of research impact, or more specifically in the context of this event, societal benefit from research, has had limited focus in Ireland to date. This event was very useful in facilitating the diverse audience to find a shared language and to collectively consider what changes would […]
We were delighted to receive an invitation to discuss electronic records in healthcare and related issues at the Joint Oireachtas Committee on Health on Wednesday, January 25th. This appearance happily coincided with the launch of the HRCI Position Paper 2023 and provided us with a wonderful opportunity to highlight the importance of the three recommendations […]
As we slowly emerge from its worst effects, the impact the Covid pandemic had on health research becomes clearer. The intense research activity highlighted issues of concern in research methodologies, data sharing and publication practices and also showed that PPI was not yet embedded in the system. However, it also demonstrated the indisputable importance of […]
Research is vital for achieving better outcomes for patients and the public who use health services in Ireland. Current frustrations, positive developments, new ideas and an unshakable belief in the possible stimulated lively, challenging, engaged, multi-stakeholder discussions at the Forum event. Speakers included Prof Philip Nolan, SFI Director General; Dr Philip Crowley, National Director for […]
On Feb 23rd 2022, at the invitation of Deputy Pádraig O’Sullivan, we had the opportunity to discuss rare diseases with Minister Stephen Donnelly, Minister Anne Rabbitte and other interested deputies and senators. We attended this event, held in advance of Rare Disease Day 2022, with colleagues from Rare Diseases Ireland, IPPOSI and CF Ireland, along with […]
In July 2021, HRCI completed a submission on a new National Research and Innovation Strategy. Among other things, our submission focuses on the importance of research and innovation in addressing societal needs, the need to value to the role of health research charities and to engage and involve the public in research. About the consultation […]
Health research charities are important leaders in research which addresses the unmet health needs of patients and the public. For charities wishing to strengthen their approach to research governance, there are many things to take into account. This guide aims to make that easier, by leading you through the issues that you need to consider. […]
