On Feb 23rd 2022, at the invitation of Deputy Pádraig O’Sullivan, we had the opportunity to discuss rare diseases with Minister Stephen Donnelly, Minister Anne Rabbitte and other interested deputies and senators. We attended this event, held in advance of Rare Disease Day 2022, with colleagues from Rare Diseases Ireland, IPPOSI and CF Ireland, along with […]
Our most recent reports, guides, templates, etc, from all our areas of activity.
In July 2021, HRCI completed a submission on a new National Research and Innovation Strategy. Among other things, our submission focuses on the importance of research and innovation in addressing societal needs, the need to value to the role of health research charities and to engage and involve the public in research. About the consultation […]
Health research charities are important leaders in research which addresses the unmet health needs of patients and the public. For charities wishing to strengthen their approach to research governance, there are many things to take into account. This guide aims to make that easier, by leading you through the issues that you need to consider. […]
2020 was a year none of us will ever forget. Despite the challenges, and even because of them, we did our best to keep the show on the road and to make the year count for our members, for our collaborators and partners and for health research itself. Have a flick through, see the range of things we do and get a sense of why we really believe in our community of health research charities.
How do we begin the conversation about research involvement with patients and the public? This new PPI toolkit helps health research charities and others starting on the journey to tackle this challenge. It offers particular guidance on facilitating a first workshop with PPI contributors. It was developed in partnership by TCD PPI Ignite, HRCI and […]
We have launched the 2019 HRCI Annual Report, which gives an overview of our many activities last year. If you are interested in our Joint Funding Scheme with the Health Research Board, in the Irish Health Research Forum, in patient and public involvement (PPI) in research or in our advocacy activities, jump in and […]
Rare diseases are characterised by their relatively low prevalence (less than 1 in 2,000 people in the EU). To have a rare disease is to have a condition that often goes undiagnosed for years. Doctors may never have seen the condition before and hospital diagnostic services may struggle to find the rare disease presented by […]
Do patients and the public trust researchers with their health data? In 2019 we held a small workshop with patients and members of the public to capture their views on how they wish their data to be treated, for the purposes of health research. Download our pdf to see the results of our findings. Do […]
HRCI has partnered with the Charities Research Involvement Group in the UK, to produce guidance on PPI in Industry. The guide was launched in September 2019 and focuses on how to overcome the issues that health research charities often face when encouraging or participating in industry-led PPI and offers practical advice on how to do […]