While 2020 will forever stick in our minds as the year Covid hit, 2021 was of course a full year lived in a pandemic. It particularly strikes us that we don’t have a single ‘in-person’ photo to share in this annual report. Despite the challenges however, it didn’t stop us from working hard to support […]
Cooperating and Collaborating I recently had the great pleasure of talking with the members of Health Research Charities Ireland. The presentation was about the value of us, as patients and members of the public, getting interested in and becoming actively involved with researchers working in laboratories. I don’t mean that we patients and public doing […]
On Feb 23rd 2022, at the invitation of Deputy Pádraig O’Sullivan, we had the opportunity to discuss rare diseases with Minister Stephen Donnelly, Minister Anne Rabbitte and other interested deputies and senators. We attended this event, held in advance of Rare Disease Day 2022, with colleagues from Rare Diseases Ireland, IPPOSI and CF Ireland, along with […]
A report from the November 2021 Irish Health Research Forum on the theme Health Research: How to be responsive and resilient in the face of crises. Based on the discussions at this event and input from our Steering Group, the IHRF makes the following recommendations, under four broad themes Undertaking more effective and inclusive research […]
Our 2022 Position Paper is all about data and its importance to health research. The themes contained within are a priority for our member charities and have also been guided by the outcomes of the Irish Health Research Forum events, which HRCI runs. The Paper lays out three recommendations for politicians and policy makers and […]
In July 2021, HRCI completed a submission on a new National Research and Innovation Strategy. Among other things, our submission focuses on the importance of research and innovation in addressing societal needs, the need to value to the role of health research charities and to engage and involve the public in research. About the consultation […]
Health research charities are important leaders in research which addresses the unmet health needs of patients and the public. For charities wishing to strengthen their approach to research governance, there are many things to take into account. This guide aims to make that easier, by leading you through the issues that you need to consider. […]
2020 was a year none of us will ever forget. Despite the challenges, and even because of them, we did our best to keep the show on the road and to make the year count for our members, for our collaborators and partners and for health research itself. Have a flick through, see the range of things we do and get a sense of why we really believe in our community of health research charities.
HRCI conducted a survey of its members in December 2020 to ascertain the impact of Covid-19 on Irish Health Research Charities. The results published in Feb 2021 demonstrate the impact on income, patients, research, and charity activities.