In May 2020, HRCI sent the research support offices of eight Irish universities a survey, asking them about the impact of COVID-19 on health research. We have compiled a brief report on the findings. All eight universities kindly responded to the survey, the findings of which will help to inform our member charities and other […]
Rare diseases are characterised by their relatively low prevalence (less than 1 in 2,000 people in the EU). To have a rare disease is to have a condition that often goes undiagnosed for years. Doctors may never have seen the condition before and hospital diagnostic services may struggle to find the rare disease presented by […]
This piece by HRCI CEO, Dr Avril Kennan, appears in ‘An Easyguide to Rare Diseases in Ireland and Consensus for Action‘, published in February 2020, by the Rare Disease Taskforce. For most rare diseases there is no cure and the management of symptoms can be very hampered by a lack of knowledge and by limited […]
Do patients and the public trust researchers with their health data? In 2019 we held a small workshop with patients and members of the public to capture their views on how they wish their data to be treated, for the purposes of health research. Download our pdf to see the results of our findings. Do […]
On 30 May 2019, a group of patient-focused organisations and other interested parties attended Health Research Charities Ireland (at the time called the Medical Research Charities Group) ‘Evidence for Advocacy’ seminar. They heard diverse perspectives from experts in research, policy and public relations (PR) and were also presented with case studies from a number of charities sharing refreshingly honest accounts of their experiences. By focusing on advocacy through a research lens, the event highlighted the power of taking an evidence-informed approach to support advocacy campaigns and to guide efforts to improve health.
This practical guide follows on from that seminar and draws on the information presented by the speakers, contributions from the floor, as well as the expertise of the authors and Health Research Charities Ireland (HRCI). We are very grateful to all who contributed.
HRCI has partnered with the Charities Research Involvement Group in the UK, to produce guidance on PPI in Industry. The guide was launched in September 2019 and focuses on how to overcome the issues that health research charities often face when encouraging or participating in industry-led PPI and offers practical advice on how to do […]
[accordionmenu id=”uniqueba38695″ accordionmenu=”732″] Members Posters from ‘The MRCG at 21: Looking to the Future of Health Research’ For this conference, Members were given the opportunity to create one-page introductory posters, describing their organisations, areas and topics they are currently researching, and how they benefit from their membership of HRCI. These were printed at A1 size […]