Patient registries play a crucial role in enhancing healthcare and health outcomes, serving as vital foundations for developing and maintaining research networks and projects. A steadily increasing appreciation of their importance in the broader health data landscape, along with advancements in technological solutions, is leading more groups to embark on developing a registry. While there […]
Health research charities are important leaders in research which addresses the unmet health needs of patients and the public. For charities wishing to strengthen their approach to research governance, there are many things to take into account. This guide aims to make that easier, by leading you through the issues that you need to consider. […]
Recommendations on Intellectual Property & Knowledge Transfer for Charity-Funded Research April 2018 A core belief of the HRCI is that charity-funded research should be used for public good; for the benefit of patients and to improve the nation’s health. This document provides guidance on the appropriate way to protect, manage and exploit intellectual property and […]
February 2018 This is a template code which can be used by patient organisations to guide their involvement with industry. We recommend that organisations adapt it, according to their own situation and needs. Developed by Health Research Charities Ireland. Patient Organisation Code of Practice: Engaging with the Healthcare Industry (code_pat_orgs.pdf | 615 kB)
