Health Research Charities Ireland along with Rare Disease Ireland, Cystic Fibrosis Ireland, IPPOSI and the Northern Ireland Rare Disease Partnership have come together to form The Rare Disease Forum. This is a public and patient involvement initiative for Ireland, North and South, which calls for coordinated action to improve the health and social care needs […]
Patient and Public Involvement in Rare Disease Research Online Event – 18.30pm, Wednesday, June 14th 2023 HRCI were very pleased to host a Rare Disease Forum event, centred around the topic of public and patient involvement (PPI) in research on June 14th. This event aimed to shift the paradigm from rare disease research conducted “to,” […]
HRCI is hosting a celebration of the HRCI-HRB Joint Funding Scheme on December 1st for our members, researchers and funders. We will be acknowledging the high-calibre research projects that were funded in the last round and the efforts of all charities and researchers who participated. We are also excited to be announcing the first ever winner […]
The Rare Disease Forum (RDF) is a public and patient involvement (PPI) initiative for Ireland, North and South. The rationale for the Forum is that much more needs to be done to address the health and social care needs of those living with a rare disease in Ireland. The founding organisations and members of the […]
Date: 28 February 2019 Time(s): 9am-1pm Venue: Chartered Accountants House, Pearse Street, Dublin 2 The 12th annual Rare Disease Day focuses on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families face every day. Rare Disease Day 2019 is […]
