Rare Disease Forum 2022-Partnering to Advance the Rare Disease Agenda
Health Research Charities Ireland along with Rare Disease Ireland, Cystic Fibrosis Ireland, IPPOSI and the Northern Ireland Rare Disease Partnership have come together to form The Rare Disease Forum. This is a public and patient involvement initiative for Ireland, North and South, which calls for coordinated action to improve the health and social care needs […]
The Future of Patient Registries in Ireland
The Cystic Fibrosis Registry of Ireland, in association with Health Research Charities Ireland (HRCI), wish to invite you to an event on: The Future of Patient Registries in Ireland Date and Time: 9.30- 1.00pm, Thursday February 2nd 2023Location: Ashling Hotel, Parkgate St, Dublin 8 This in-person event will bring together stakeholders in the patient/disease registry […]
Rare Disease Forum-Partnering to Advance the Rare Disease Agenda
Health Research Charities Ireland along with Rare Disease Ireland, Cystic Fibrosis Ireland, IPPOSI and the Northern Ireland Rare Disease Partnership have come together to form The Rare Disease Forum. This is a public and patient involvement initiative for Ireland, North and South, which calls for coordinated action to improve the health and social care needs […]
