The Future of Patient Registries in Ireland
The Cystic Fibrosis Registry of Ireland, in association with Health Research Charities Ireland (HRCI), wish to invite you to an event on: The Future of Patient Registries in Ireland Date and Time: 9.30- 1.00pm, Thursday February 2nd Location: Ashling Hotel, Parkgate St, Dublin 8 This in-person event will bring together stakeholders in the patient/disease registry […]
Rare Disease Forum-Partnering to Advance the Rare Disease Agenda
Health Research Charities Ireland along with Rare Disease Ireland, Cystic Fibrosis Ireland, IPPOSI and the Northern Ireland Rare Disease Partnership have come together to form The Rare Disease Forum. This is a public and patient involvement initiative for Ireland, North and South, which calls for coordinated action to improve the health and social care needs […]
Celebrating the HRCI/HRB Joint Funding Scheme
HRCI is hosting a celebration of the HRCI-HRB Joint Funding Scheme on December 1st for our members, researchers and funders. We will be acknowledging the high-calibre research projects that were funded in the last round and the efforts of all charities and researchers who participated. We are also excited to be announcing the first ever winner […]
HRCI & HRB announce successfully funded Joint Funding Scheme projects
HRCI Annual Report 2022
The HRCI 2022 Annual Report In 2022, we were determined to reconnect and facilitate crucial conversations among our community following the challenges of the pandemic. We organised an in-person workshop in March, partnering with the PPI Ignite Network, which brought together colleagues for the first time in years. The event was filled with joy and […]
More than publications: Maximising societal benefit from health research November 2022
You can read the full report here The topic of research impact, or more specifically in the context of this event, societal benefit from research, has had limited focus in Ireland to date. This event was very useful in facilitating the diverse audience to find a shared language and to collectively consider what changes would […]
Research Ethics in Ireland: How do we strengthen and harmonise the system?
HRCI is delighted to welcome attendees to this in-person Irish Health Research Forum event. There are many good people working hard to ensure that the highest standards in research ethics are maintained in Ireland. This is often done under difficult circumstances and many contribute in a purely voluntary capacity. Despite the huge efforts by […]
HRCI at the Oireachtas Committee on Health
We were delighted to receive an invitation to discuss electronic records in healthcare and related issues at the Joint Oireachtas Committee on Health on Wednesday, January 25th. This appearance happily coincided with the launch of the HRCI Position Paper 2023 and provided us with a wonderful opportunity to highlight the importance of the three recommendations […]