The Future of Patient Registries in Ireland
The Cystic Fibrosis Registry of Ireland, in association with Health Research Charities Ireland (HRCI), wish to invite you to an event on: The Future of Patient Registries in Ireland Date and Time: 9.30- 1.00pm, Thursday February 2nd Location: Ashling Hotel, Parkgate St, Dublin 8 This in-person event will bring together stakeholders in the patient/disease registry […]
Rare Disease Forum-Partnering to Advance the Rare Disease Agenda
Health Research Charities Ireland along with Rare Disease Ireland, Cystic Fibrosis Ireland, IPPOSI and the Northern Ireland Rare Disease Partnership have come together to form The Rare Disease Forum. This is a public and patient involvement initiative for Ireland, North and South, which calls for coordinated action to improve the health and social care needs […]
Celebrating the HRCI/HRB Joint Funding Scheme
HRCI is hosting a celebration of the HRCI-HRB Joint Funding Scheme on December 1st for our members, researchers and funders. We will be acknowledging the high-calibre research projects that were funded in the last round and the efforts of all charities and researchers who participated. We are also excited to be announcing the first ever winner […]
HRCI & HRB announce successfully funded Joint Funding Scheme projects
HRCI at the Oireachtas Committee on Health
We were delighted to receive an invitation to discuss electronic records in healthcare and related issues at the Joint Oireachtas Committee on Health on Wednesday, January 25th. This appearance happily coincided with the launch of the HRCI Position Paper 2023 and provided us with a wonderful opportunity to highlight the importance of the three recommendations […]
The Future of Patient Registries in Ireland
The Cystic Fibrosis Registry of Ireland, in association with Health Research Charities Ireland (HRCI), wish to invite you to an event on: The Future of Patient Registries in Ireland Date and Time: 9.30- 1.00pm, Thursday February 2nd Location: Ashling Hotel, Parkgate St, Dublin 8 This in-person event will bring together stakeholders in the patient/disease registry […]
HRCI 2023 Position Paper – Embedding research in healthcare
As we slowly emerge from its worst effects, the impact the Covid pandemic had on health research becomes clearer. The intense research activity highlighted issues of concern in research methodologies, data sharing and publication practices and also showed that PPI was not yet embedded in the system. However, it also demonstrated the indisputable importance of […]
