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Siobhán Freeney

Siobhán Freeney

Siobhán Freeney

I have been an active patient advocate following my treatment for Breast Cancer and my husband’s treatment for Prostate Cancer, both in 2016.  I retired a little early so I have been able to contribute fairly significantly to areas I’m specifically interested in, Breast Cancer research and personalised targeted treatments.

Experience/Areas of Interest

  • Founder of beingdense.com 2016
  • Founder Member of Lobular Ireland, lobularireland.com 2019
  • Irish Patient Advocate elbcc.org European Lobular Breast Cancer Consortium
  • Graduate of 2019 IPPOSI Patient Education Training Programme
  • Member of the Susan G Komen.org Advocates in Science (AIS) Program
  • Member of the Irish Cancer Society PPI patient review panel 2020
  • Member of the HPRA Patient Forum 2020

Patient Involvement/Experience

  • Co-Hosted the first Irish Mammographic Breast Density Seminar June 2019 in the Royal College of Surgeons
  • Patient Advocate at the European Lobular Breast Cancer Consortium KU Leuven, Belgium
  • On Line webinars with International, Irish Scientists and Researchers for the Breast Cancer Community
  • Panellist on several PPI discussion platforms, IPPOSI, Breast Predict, INHED
  • Contributor to Radio, Print Media, Social Media for Women’s Health awareness
  • Marie Keating Foundation Breast Cancer Awareness Campaign 2020 #NotJustPink

Link to Irish Government websiteLink to Pobal websiteLink to Health Research Board website