Lorna Kerin is currently Manager at the Public and Patient Involvement (PPI) Research Unit in the University of Limerick
Lorna was previously Manager of Public Patient Involvement in Research at RCSI University of Medical and Healthcare Sciences where she established the PPI Ignite structures, policies and procedures on behalf of RCSI and the national PPI Ignite Network
Lorna was also Lead for Public Patient Involvement in FutureNeuro SFI Center for Chronic and Rare Neurological Diseases. In this role, she established the Neurological PPI Panel and led out on the Deliberative Dialogue on Genomics to inform the implementation of national HSE policy, involving patients, advocates, clinicians and researchers.
Lorna is Director of Love Knowledge Consultancy, a participatory health research consultancy facilitating community, voluntary and statutory organisations to collaborate to improve health services and population health. In this role, Lorna has worked with 22q Ireland Family Support Group since 2014 using a PPI approach to generate research evidence to advocate for and inform the development of health services for children and young people with this ‘most common’ of rare chromosomal disorders, 22q11.2 deletion syndrome.
This research approach has given voice and visibility to young people and families living with the condition, motivating strong clinician-patient advocate partnerships to improve health and social care. This has ultimately resulted in clinical services including a paediatric hospital clinic, a complex care coordinator, a transition clinic – and many more collaborative plans!