Our Members
Health Research Charities Ireland consists of approx. 40 charities. Together, they represent well over 1 million patients across Ireland. HRCI membership ensures that these patients are represented with a strong and unified voice in calling for a world class medical research environment for Ireland. Our members range from large research funding charities to small, voluntary-run patient organisations, all supporting patients nationally, through research, and often, care. They span many areas of health, including rare diseases, childhood illnesses, dementia, mental health, and many forms of chronic illness and disability. All are involved in medical and health research.
22q11 Ireland
The 22q11 Ireland Support Group was set up to provide help, support and accurate information to Irish families. 22q11 Deletion syndrome is a complex variable condition with over 180 different symptoms caused by a micro-deletion on the 22nd chromosome. No two persons with 22qDS will have exactly the same symptoms and some individuals will develop newer ones over time. https://www.22q11ireland.org/
All Ireland Institute of Hospice & Palliative Care (AIIHPC)
A collaborative of hospices, health & social care organisations & universities which advances education http://aiihpc.org/
Alpha One Foundation
The Alpha One Foundation was established in 2001 to promote research into Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the diagnosis, treatment, life expectancy and quality of life of people with this inherited condition. www.alpha1.ie
Alzheimer Society of Ireland
The Alzheimer Society of Ireland is the leading dementia specific service provider in Ireland. It is a national voluntary organisation that aims to provide people with all forms of dementia, their families and carers with the necessary support to maximise their quality of life. www.alzheimer.ie
Arthritis Ireland
Arthritis Ireland is the only national charity dedicated to improving the quality of life for people of all ages with arthritis www.arthritisireland.ie
Breakthrough Cancer Research
Breakthrough Cancer Research funds the efficient and effective development of new treatments for cancer. We work to significantly impact the number of people who can survive this disease. www.breakthroughcancerresearch.ie
The Centre for Arthritis and Rheumatic Diseases (CARD)
CARD rheumatology at St Vincent’s University Hospital is a EULAR Centre of Excellence for research and education. Our main focus is on patients with early, inflammatory arthritis eg. rheumatoid / psoriatic and vasculitis eg. Giant Cell Arteritis. We aim to provide patients with state-of-the-art treatment and information about their conditions. Our key scientific focus is on understanding mechanisms of inflammation in rheumatic diseases, with a view to providing the most relevant treatment to individual patients https://arthritissvuh.com/
Central Remedial Clinic
Working together to make a positive difference to the lives of people with disabilities, their families, and carers. https://www.crc.ie/
CLAPAI - Cleft Lip and Palate Association of Ireland
CLAPAI is a voluntary group formed to provide support & information for parents of children affected by cleft lip & palate & to those directly affected by the condition. It seeks to provide support through talking to new parents & providing advice on feeding & ongoing medical care throughout the treatment. Most of the people on the CLAPAI committee are parents themselves & so are in a position to give practical advice & support. www.cleft.ie
CFNCRF - Conor Foley Neuroblastoma Cancer Research Foundation
The Conor Foley Neuroblastoma Cancer Research Foundation was set up after
we lost our son Conor to this disease. Conor did a lot for research in the latter
years of his life by participating in new drug trials and allowing his tumour
samples to be collected and used for research. As very little developments in
new agents or survival rates had changed in the 10 years that Conor was cancer
free, we decided to continue Conor’s legacy in research to hopefully one day be
a part of a team that finds a cure for this horrible childhood cancer. http://foleye5.wixsite.com/conor-foley
Croí West of Ireland Cardiac Foundation
Croí is dedicated to improving the quality of life for all through the prevention and control of cardiovascular disease. www.croi.ie
Cystic Fibrosis Ireland
Cystic Fibrosis Ireland was set up in 1963 to increase knowledge and awareness of CF and to give advice and support to people with Cystic Fibrosis and their families. http://www.cfireland.ie/
Cystic Fibrosis Registry of Ireland
The CFRI is a registry organisation which records, stores and analyses relevant data about the health and medical treatment of people with cystic fibrosis (CF) in the Republic of Ireland. By collecting and analysing information on all people with CF in Ireland, we can better understand their health and wellbeing, and the treatments they receive.
www.cfri.ie
Cystinosis Foundation Ireland
Cystinosis Foundation Ireland is an all volunteer, non-profit organisation dedicated to providing services and suppport for those in affected by Cystinosis. The Foundation also funds research into the causes and improved treatments of Cystinosis. www.cystinosis.ie
DEBRA
DEBRA Ireland is the national charity established in1988 to provide patient support services and to drive research into treatments and cures for those living with the genetic skin condition, epidermolysis bullosa (EB). http://www.debraireland.org/
Diabetes Ireland Research Alliance
Diabetes Ireland Research Alliance is a subsidiary of the Diabetes Federation of Ireland. It was set up to promote Ireland as a knowledge base for global diabetes research and increase the level of diabetes research being undertaken in Ireland.
https://www.diabetes.ie/research/what-is-research/dira/
Duchenne Ireland
The aim of Duchenne Ireland is to raise awareness of Duchenne Muscular Dystrophy at local, national and government level. The organisation raises funds to go directly to the researchers and clinicians who they believe have the best chance of developing improved therapies which will benefit this generation. www.duchenne.ie
Dystonia Ireland
The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national support group for dystonia, we also represent the interests of our members with international support agencies and dystonia networks. http://www.dystonia.ie/
Epilepsy Ireland
Epilepsy Ireland is committed to improving the lives of people with epilepsy in Ireland. Brainwave provides a wide range of services aimed at people with epilepsy, their parents, families and friends as well as raising epilepsy awareness and funding epilepsy research. http://www.epilepsy.ie/
Family Carers Ireland
FCI is a national membership charity for carers, working to improve supports, services, and recognition for anyone living with the challenges of caring for a family member or friend who is ill, frail, disabled, or has mental health difficulties. Through out network of 22 resource centres and 66 support groups we engage with approximately 20,000 family carers throughout the year. https://familycarers.ie/
Fighting Blindness
Fighting Blindness is an Irish patient-led charity funding & enabling world-leading research into treatments & cures for blindness. Through education and advocacy Fighting Blindness works to empower everyone in Ireland living with severe vision impairment. For more information, visit www.FightingBlindness.ie
Friends of the Coombe
Friends of the Coombe is a charity organisation established in 1982 to raise funds to assist the development of the Coombe Women & Infants University Hospital. We are one of the largest and most comprehensive providers of Women & Infant healthcare in Europe. www.friendsofthecoombe.ie/
Irish Cancer Society
The Irish Cancer Society aims to improve the lives of those affected by cancer, by providing up to date information and a range of services, by influencing change and raising awareness of cancer issues. www.cancer.ie
The Irish Heart Foundation
The Irish Heart Foundation is a national charity whose mission is to lead in improving the cardiovascular health of people living in Ireland so they do not experience disability or die from preventable heart, stroke and other blood vessel diseases. www.irishheart.ie
Irish Nephrology Society
The Irish Nephrology Society is comprised of doctors and scientists working in the care of patients with kidney disease, either at a clinical or research level. The mission of the Irish Nephrology Society is to ensure a high quality care for patients with kidney disease by promoting the highest standard of medical practice. www.nephrology.ie
Irish Thoracic Society
The Irish Thoracic Society is the official society for the broad spectrum of healthcare professionals involved in the care of people with chronic or acute respiratory disease in Ireland www.irishthoracicsociety.com
MSD Action Foundation
MSD Action Foundation and SavingDylan.com were established in 2015. To promote and support research advancements that will lead to improvements in clinical outcomes, life expectancy and quality of life for patients suffering from Multiple Sulfatase Deficiency. www.savingdylan.com/
MS Ireland
MS Ireland exists to enable and empower people affected by Multiple Sclerosis to live the life of their choice to their fullest potential www.ms-society.ie
Muscular Dystrophy Ireland
Muscular Dystrophy Ireland aims to provide information, advice and support to people with neuromuscular conditions and their families through a range of support services. http://www.mdi.ie/
National Children's Research Centre
Our goal is to facilitate research into the diagnosis, treatment and prevention of childhood diseases, through the award of research grants funded by the Children’s Medical Research Foundation(CMRF) www.nationalchildrensresearchcentre.ie
Research Motor Neurone - The Irish Motor Neurone Disease Research Foundation CLG
Research Motor Neurone (RMN) was founded in 2007, for the purpose of promoting and facilitating research into the causes and treatments of motor neurone disease (MND), also known as ALS. RMN also strives to increase awareness of this incurable disease at both a national and international level.Ongoing research is needed to discover the cause, treatment and methods of improving quality of life for MND sufferers and their families. http://mnd.ie
Rett Syndrome Association of Ireland
The Rett Syndrome Association of Ireland is an association of parents and families of people affected with Rett Syndrome and other related disorders. http://www.rettsyndrome.ie/
Royal Victoria Eye and Ear Research Foundation
The main function of the Research Foundation is to provide equipment and financial support to staff members at the Royal Victoria Eye and Ear Hospital. It also carries out Research Projects throughout the country for subsequent publication in the literature and presentation at Medical Conferences.
http://www.rveeh.ie/rveeh/departments/Research_Foundation.html
St John of God Research Foundation
The Saint John of God Research works to promote and support the development of research strategies in the areas of Intellectual Disability, Adult Mental Health and Child and Adolescent Mental Health, in line with the Order’s research mission and national / international developments. http://www.sjog.ie/
St Patrick's Mental Health Services
St Patrick’s Mental Health Services is Ireland’s largest independent, not-for-profit mental health service. The hospital, in conjunction with the TCD School of Psychiatry and St. James’ Hospital have developed a vigorous and broad-based programme of clinical research over the past thirty years. www.stpatricks.ie
St Vincent's Anaesthesia Foundation
St. Vincent’s Anaesthesia Foundation is a Charity Trust , set up to support and promote the advancement of education & research in relation to Anaesthesia, Intensive Care & Pain Medicine. http://www.sedda.ie/
Temple Street Foundation
The Temple Street Foundation raises money to enable the Temple Street Children’s University Hospital to provide world class care and to pioneer new treatments and cures for childhood illnesses. http://www.templestreet.ie/
The Heartbeat Trust
The Heartbeat Trust supports research and special services in the Heart Failure Unit in St Vincent’s University Hospital Group. http://heartbeat-trust.ie/
The Rotunda Foundation
The Rotunda Foundation (formerly known as the Friends of the Rotunda) is committed in its support of the Rotunda Hospital to strongly embrace the concept of conducting high quality research and new procedures that lead to better patient care. https://rotunda.ie/rotunda-foundation/
