HRCI / PPI Ignite Network – Charities & Researchers Partnering Guide
Guidance for charities, other civil society organisations, researchers, research institutions and funders, to achieve successful research partnerships. This publication delves into the immense value that arises when charities and researchers partner to achieve societal benefit from research. The amalgamation of their distinct expertise and wisdom holds the potential to improve lives. However, despite the promise, […]
HRCI at the Oireachtas Committee on Health
We were delighted to receive an invitation to discuss electronic records in healthcare and related issues at the Joint Oireachtas Committee on Health on Wednesday, January 25th. This appearance happily coincided with the launch of the HRCI Position Paper 2023 and provided us with a wonderful opportunity to highlight the importance of the three recommendations […]
HRCI 2023 Position Paper – Embedding research in healthcare
As we slowly emerge from its worst effects, the impact the Covid pandemic had on health research becomes clearer. The intense research activity highlighted issues of concern in research methodologies, data sharing and publication practices and also showed that PPI was not yet embedded in the system. However, it also demonstrated the indisputable importance of […]
Rare Disease Day meeting with ministers & other political representatives
On Feb 23rd 2022, at the invitation of Deputy Pádraig O’Sullivan, we had the opportunity to discuss rare diseases with Minister Stephen Donnelly, Minister Anne Rabbitte and other interested deputies and senators. We attended this event, held in advance of Rare Disease Day 2022, with colleagues from Rare Diseases Ireland, IPPOSI and CF Ireland, along with […]
