Rare Disease Day meeting with ministers & other political representatives
On Feb 23rd 2022, at the invitation of Deputy Pádraig O’Sullivan, we had the opportunity to discuss rare diseases with Minister Stephen Donnelly, Minister Anne Rabbitte and other interested deputies and senators. We attended this event, held in advance of Rare Disease Day 2022, with colleagues from Rare Diseases Ireland, IPPOSI and CF Ireland, along with […]
HRCI’s 2022 Position Paper – Using data for better health research
Our 2022 Position Paper is all about data and its importance to health research. The themes contained within are a priority for our member charities and have also been guided by the outcomes of the Irish Health Research Forum events, which HRCI runs. The Paper lays out three recommendations for politicians and policy makers and […]
HRCI’s submission to consultation on National Research & Innovation Strategy 2021-27
In July 2021, HRCI completed a submission on a new National Research and Innovation Strategy. Among other things, our submission focuses on the importance of research and innovation in addressing societal needs, the need to value to the role of health research charities and to engage and involve the public in research. About the consultation […]
Impact of Covid-19 on Irish Health Research Charities
HRCI conducted a survey of its members in December 2020 to ascertain the impact of Covid-19 on Irish Health Research Charities. The results published in Feb 2021 demonstrate the impact on income, patients, research, and charity activities.
