Public Consultation on Patient Organisation Submission

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April 2018

The National Centre for Pharmacoeconomics (NCPE) performs detailed reviews of the clinical effectiveness and cost-effectiveness of new and existing drugs at the request of the Health Service Executive (HSE).

In 2016, the NCPE launched the Patient Organisation Submission of Evidence process. The purpose of this process is to supplement its health technology assessment reports with information collected directly by patients, from patients, detailing the real-life experience of living with the disease in question and how the new treatment may address the challenges arising from the disease.

Towards the end of 2017, the NCPE undertook a review of the process with input from HSE decision makers, submitting patient organisations and participants in the IPPOSI Pilot
Patient Education Program. Based on the feedback provided, it has developed new guidelines,
processes and updated our Patient Organisation Submission of Evidence template.

The NCPE requested the views of potential users of the updated documents, to ensure they
are relevant, patient focused and user-friendly and so, the MRCG responded with a submission.

Attached Documents