Patient & Public Involvement Publications related to our work on PPI.
How do we begin the conversation about research involvement with patients and the public? This new PPI toolkit helps health research charities and others starting on the journey to tackle this challenge. It offers particular guidance on facilitating a first workshop with PPI contributors. It was developed in partnership by TCD PPI Ignite, HRCI and […]
When: Wed 29th of Jan at 8pm. Hashtag: Use the hashtag #IndustryPPI to join the conversation Background: Recently the Charities Research Involvement Group (CRIG), supported by Health Research Charities Ireland (HRCI), developed a guide for charities, entitled ‘Supporting patient and public involvement in industry-led research’. On the morning of Jan 29th, HRCI will host a briefing […]
Do patients and the public trust researchers with their health data? In 2019 we held a small workshop with patients and members of the public to capture their views on how they wish their data to be treated, for the purposes of health research. Download our pdf to see the results of our findings. Do […]
We are making progress in PPI in academic research in Ireland but less so in industry-led research. It’s time to discuss the importance, talk about how to overcome the barriers and hopefully develop some new relationships as we do so.
Universities and colleges are our great bastions of knowledge. Despite the many pressures on their time, one of the great joys of being an academic (I am using the term academic broadly) is in being paid to generate new knowledge. Lauding academics as knowledge holders and experts bestows on them the esteem required to ensure […]
Click here to download a copy of the guide HRCI has partnered with the Charities Research Involvement Group in the UK, to produce guidance on PPI in Industry. The guide was launched in September 2019 and focuses on how to overcome the issues that health research charities often face when encouraging or participating in industry-led […]
Date: 30 May 2019 Time(s): 9am-1pm Venue: The Carmelite Community Centre, 56 Aungier Street, Dublin 2 The Medical Research Charities Group invites you to attend a seminar on Evidence for Advocacy Patient-focused charities and other community organisations increasingly seek to be guided in their activities by evidence. In parallel, policy makers now regularly insist on evidence from those who are […]
[accordionmenu id=”uniqueba38695″ accordionmenu=”732″] Wednesday, March 27th, 2019 DCU PPI Ignite- PPI in Research Communicating and managing relationships with the Public and Patients Attached Documents Dr Avril Kennan Slides (1.96 MB) Dr Laura Brady slides (3.17 MB)
October 2018 Language is perhaps the most valuable tool that we have as humans. It is important in not only conveying our meaning, but also as an instrument of positive change. During numerous recent meetings I have found myself immersed in discussion on the language of patient and public involvement (PPI). These discussions have left […]