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Templates & Guides
A Governance Guide for Health Research Charities
Health research charities are important leaders in research which addresses the unmet health needs of patients and the public. For charities wishing to strengthen their approach to research governance, there are many things to take into account. This guide aims to make that easier, by leading you through the issues that you need to consider. […]
A new PPI toolkit
How do we begin the conversation about research involvement with patients and the public? This new PPI toolkit helps health research charities and others starting on the journey to tackle this challenge. It offers particular guidance on facilitating a first workshop with PPI contributors. It was developed in partnership by TCD PPI Ignite, HRCI and […]
An Easyguide to Rare Diseases in Ireland and Consensus for Action
Rare diseases are characterised by their relatively low prevalence (less than 1 in 2,000 people in the EU). To have a rare disease is to have a condition that often goes undiagnosed for years. Doctors may never have seen the condition before and hospital diagnostic services may struggle to find the rare disease presented by […]
