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Rare diseases are characterised by their relatively low prevalence (less than 1 in 2,000 people in the EU). To have a rare disease is to have a condition that often goes undiagnosed for years. Doctors may never have seen the condition before and hospital diagnostic services may struggle to find the rare disease presented by […]
Click below to download a pdf of the document: Supporting PPI in industry-led research_Guidance for Charities_CRIG and HRCI Supporting patient and public involvement in industry-led research: guidance for charities Click the image to download the pdf or read in your browser.