Publications

 Developing a Patient Registry: A Practical Guide (Patient_Registries_Guide_27th_Aug_2018.pdf | 910 kB)

September 2018

Patient registries are broadly recognised as a critical underpinning for improving healthcare through research. As an umbrella organisation for many medical research charities intimately involved in this pursuit,registries are a reoccurring theme. Despite their importance however,in too many cases, registries remain a thing of the future.

 Developing a PPI Strategy: A Guide (PPI_Strategy_8pp_Lo_Res_9-18.pdf | 935 kB)

September 2018

Practical advice on developing a patient and public involvement (PPI) strategy for research activities.

 Recommendations on Intellectual Property & Knowledge Transfer for Charity-Funded Research (MRCG_IP_recommendations.pdf | 787 kB)

April 2018
A core belief of the MRCG is that charity-funded research should be used for public good; for the benefit of patients and to improve the nation\’s health. This document provides guidance on the appropriate way to protect, manage and exploit intellectual property and to publicise research findings, generated in the course of a charity-funded research project.

 TEMPLATE Patient Organisation Code of Practice: Engaging with the Healthcare Industry (code_pat_orgs.pdf | 615 kB)

February 2018


This is a template code which can be used by patient organisations to guide their involvement with industry. We recommend that organisations adapt it, according to their own situation and needs.
Developed by the Medical Research Charities Group (MRCG)