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Health Research Charities Ireland consists of 39 charities. Together, they represent well over 1 million patients across Ireland. Membership of the MRCG ensures that these patients are represented with a strong and unified voice in calling for a world class medical research environment for Ireland. Our 39 members range from large research funding charities to small, voluntary-run patient organisations, all supporting patients nationally, through research, and often, care. They span many areas of health, including rare diseases, childhood illnesses, dementia, mental health, and many forms of chronic illness and disability. All are involved in medical and health research.
The 22q11 Ireland Support Group was set up to provide help, support and accurate information to Irish families. 22q11 Deletion syndrome is a complex variable condition with over 180 different symptoms caused by a micro-deletion on the 22nd chromosome. No two persons with 22qDS will have exactly the same symptoms and some individuals will develop newer ones over time. https://www.22q11ireland.org/
A collaborative of hospices, health & social care organisations & universities which advances education http://aiihpc.org/
The Alpha One Foundation was established in 2001 to promote research into Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the diagnosis, treatment, life expectancy and quality of life of people with this inherited condition. www.alpha1.ie
The Alzheimer Society of Ireland is the leading dementia specific service provider in Ireland. It is a national voluntary organisation that aims to provide people with all forms of dementia, their families and carers with the necessary support to maximise their quality of life. www.alzheimer.ie
Arthritis Ireland is the only national charity dedicated to improving the quality of life for people of all ages with arthritis www.arthritisireland.ie
Breakthrough Cancer Research funds the efficient and effective development of new treatments for cancer. We work to significantly impact the number of people who can survive this disease. www.breakthroughcancerresearch.ie
Working together to make a positive difference to the lives of people with disabilities, their families, and carers. https://www.crc.ie/
CLAPAI is a voluntary group formed to provide support & information for parents of children affected by cleft lip & palate & to those directly affected by the condition. It seeks to provide support through talking to new parents & providing advice on feeding & ongoing medical care throughout the treatment. Most of the people on the CLAPAI committee are parents themselves & so are in a position to give practical advice & support. www.cleft.ie
COPD Support Ireland supports all those living with chronic obstructive pulmonary disease (COPD), a lung condition that makes it hard for sufferers to breathe due to the obstruction of the airwaves in their lungs. It brings together local support groups from around the country, to help those living with and caring for someone with COPD. www.copd.ie
Croí is dedicated to improving the quality of life for all through the prevention and control of cardiovascular disease. www.croi.ie
Cystic Fibrosis Ireland was set up in 1963 to increase knowledge and awareness of CF and to give advice and support to people with Cystic Fibrosis and their families. http://www.cfireland.ie/
Cystinosis Foundation Ireland is an all volunteer, non-profit organisation dedicated to providing services and suppport for those in affected by Cystinosis. The Foundation also funds research into the causes and improved treatments of Cystinosis. www.cystinosis.ie
DEBRA Ireland is the national charity established in1988 to provide patient support services and to drive research into treatments and cures for those living with the genetic skin condition, epidermolysis bullosa (EB). http://www.debraireland.org/
Diabetes Ireland Research Alliance is a subsidiary of the Diabetes Federation of Ireland. It was set up to promote Ireland as a knowledge base for global diabetes research and increase the level of diabetes research being undertaken in Ireland.
Disability Federation of Ireland (DFI) is the national support organisation for voluntary disability organisations in Ireland who provide services to people with disabilities and disabling conditions. There are 127 organisations within membership or as associates in DFI.www.disability-federation.ie/
The aim of Duchenne Ireland is to raise awareness of Duchenne Muscular Dystrophy at local, national and government level. The organisation raises funds to go directly to the researchers and clinicians who they believe have the best chance of developing improved therapies which will benefit this generation. www.duchenne.ie
The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national support group for dystonia, we also represent the interests of our members with international support agencies and dystonia networks.
Epilepsy Ireland is committed to improving the lives of people with epilepsy in Ireland. Brainwave provides a wide range of services aimed at people with epilepsy, their parents, families and friends as well as raising epilepsy awareness and funding epilepsy research. http://www.epilepsy.ie/
Fighting Blindness is an Irish patient-led charity funding & enabling world-leading research into treatments & cures for blindness. Through education and advocacy Fighting Blindness works to empower everyone in Ireland living with severe vision impairment. For more information, visit www.FightingBlindness.ie
Friends of the Coombe is a charity organisation established in 1982 to raise funds to assist the development of the Coombe Women & Infants University Hospital. We are one of the largest and most comprehensive providers of Women & Infant healthcare in Europe. www.friendsofthecoombe.ie/
The mission of Heart Children Ireland is to enable all children born with Congenital Heart Defects to have the best possible lives. They also aim is to provide practical support for members and to support bereaved families whose children have died from CHD. www.heartchildren.ie
The Irish Cancer Society aims to improve the lives of those affected by cancer, by providing up to date information and a range of services, by influencing change and raising awareness of cancer issues. www.cancer.ie
The Irish Heart Foundation is a national charity whose mission is to lead in improving the cardiovascular health of people living in Ireland so they do not experience disability or die from preventable heart, stroke and other blood vessel diseases. www.irishheart.ie
The Irish Nephrology Society is comprised of doctors and scientists working in the care of patients with kidney disease, either at a clinical or research level. The mission of the Irish Nephrology Society is to ensure a high quality care for patients with kidney disease by promoting the highest standard of medical practice. www.nephrology.ie
The Irish Thoracic Society is the official society for the broad spectrum of healthcare professionals involved in the care of people with chronic or acute respiratory disease in Ireland www.irishthoracicsociety.com
MSD Action Foundation and SavingDylan.com were established in 2015. To promote and support research advancements that will lead to improvements in clinical outcomes, life expectancy and quality of life for patients suffering from Multiple Sulfatase Deficiency. www.savingdylan.com/
MS Ireland exists to enable and empower people affected by Multiple Sclerosis to live the life of their choice to their fullest potential www.ms-society.ie
Muscular Dystrophy Ireland aims to provide information, advice and support to people with neuromuscular conditions and their families through a range of support services. http://www.mdi.ie/
Our goal is to facilitate research into the diagnosis, treatment and prevention of childhood diseases, through the award of research grants funded by the Children\’s Medical Research Foundation(CMRF) www.nationalchildrensresearchcentre.ie
The Research & Education Foundation is dedicated to the improvement of health and healthcare delivery by promoting the development of a culture of research and education at Sligo General Hospital and in its region. http://www.ref-sligo.ie/
Research Motor Neurone (RMN) was founded in 2007, for the purpose of promoting and facilitating research into the causes and treatments of motor neurone disease (MND), also known as ALS. RMN also strives to increase awareness of this incurable disease at both a national and international level.Ongoing research is needed to discover the cause, treatment and methods of improving quality of life for MND sufferers and their families. http://mnd.ie
The main function of the Research Foundation is to provide equipment and financial support to staff members at the Royal Victoria Eye and Ear Hospital. It also carries out Research Projects throughout the country for subsequent publication in the literature and presentation at Medical Conferences.
We are a registered Irish not-for-profit charity dedicated to making positive life impacts for critically and seriously ill children throughout the island of Ireland.
We raise funds to deliver services and supports to these sick children; we help fund vital research; and we provide guidance and information for their carers and families.
The Saint John of God Research works to promote and support the development of research strategies in the areas of Intellectual Disability, Adult Mental Health and Child and Adolescent Mental Health, in line with the Order\’s research mission and national / international developments. http://www.sjog.ie/
St Patrick\’s Mental Health Services is Ireland\’s largest independent, not-for-profit mental health service. The hospital, in conjunction with the TCD School of Psychiatry and St. James\’ Hospital have developed a vigorous and broad-based programme of clinical research over the past thirty years. www.stpatricks.ie
St. Vincent\’s Anaesthesia Foundation is a Charity Trust , set up to support and promote the advancement of education & research in relation to Anaesthesia, Intensive Care & Pain Medicine. http://www.sedda.ie/
The Temple Street Foundation raises money to enable the Temple Street Children\’s University Hospital to provide world class care and to pioneer new treatments and cures for childhood illnesses. http://www.templestreet.ie/
The Heartbeat Trust supports research and special services in the Heart Failure Unit in St Vincent\’s University Hospital Group. http://heartbeat-trust.ie/
The Rotunda Foundation (formerly known as the Friends of the Rotunda) is committed in its support of the Rotunda Hospital to strongly embrace the concept of conducting high quality research and new procedures that lead to better patient care. https://rotunda.ie/rotunda-foundation/