The Future of Patient Registries in Ireland
The Cystic Fibrosis Registry of Ireland, in association with Health Research Charities Ireland (HRCI), wish to invite you to an event on:
The Future of Patient Registries in Ireland
Date and Time: 9.30- 1.00pm, Thursday February 2nd 2023
Location: Ashling Hotel, Parkgate St, Dublin 8
This in-person event will bring together stakeholders in the patient/disease registry space in Ireland to network, share learning about operating a registry in the Irish context and to discuss the sustainability of registries as a whole.
Through presentations, Q&A and a panel discussion, this half-day event will give participants insights into:
- The operations of registries at different stages of development
- The Irish policy context: the Health Information Bill and health information standards
It will also consider and seek audience input on the sustainability & value of registries in the long-term.
We would appreciate it if you can share this invitation with colleagues and stakeholders you feel may be interested in this topic. Places are filling up fast, so if you haven’t yet registered, please click the link below ASAP.
Note: This is an in-person event only. We are unable to faciltate remote access – sincere apologies to anyone who is unable to travel.
